Resources

Children with Down syndrome often have significant health and quality of life issues. Research continues to advance medical and surgical treatment for the many possible physical disorders. Individuals affected by intellectual disabilities and developmental delays can benefit from early and persistent interventions designed to promote development in the areas of speech and language, gross and fine motor function, cognition and learning, and self-help skills.

Here are some additional resources to help you serve the intersts of your patients and their families.

• CDC - Data and Statistics on Down Syndrome. https://www.cdc.gov/ncbddd/birthdefects/downsyndrome/data.html
• CDC - Growth Charts for Children with Down Syndrome. https://www.cdc.gov/ncbddd/birthdefects/downsyndrome/growth-charts.html
• Down Syndrome Resource Foundation (DSRF) - offers educational and health opportunities for individuals with Down syndrome. https://www.dsrf.org/
• National Association for Down Syndrome - seeks to help families, educate the public, address social issues and challenges, and facilitate active participation. https://www.nads.org/.
• National Down Syndrome Society (NDSS) - seeks to increase awareness and acceptance of those with Down syndrome. https://www.ndss.org/resources/the-heart-down-syndrome/

General related resources.

• Adult Congenital Heart Disease Association - offers information on topics concerning congenital heart conditions.
  www.achaheart.org
• American Heart Association - working to build healthier lives, free of cardiovascular diseases and stroke. www.heart.org.
• Little Hearts - Provides support, education, resources, networking and hope to families affected by congenital heart defects.
  www.littlehearts.org

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